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Incontinence Support Blog

Caleb Bartlett

Recent Posts

Safety In the ER

Posted by Caleb Bartlett

Dec 6, 2017 5:51:50 PM

About a month ago I did something I swore I would never do. I feel asleep in my wheelchair, lost my balance, and fell on the floor. I sustained a spinal cord injury almost twenty-four years ago and because of sitting for so long I developed bone density issues and arthritis, particularly in the legs and hips. So falling can be a dangerous thing. Because I lack sensation in a certain capacity I can hurt myself and not know it so it is necessary to have x-rays and a CAT scan to be certain I’m unharmed. This means a trip to the ER.

This is never pleasant for anyone regardless of their situation and if you have spent any time around the medical profession in America you know all hospitals are not created equal. Some are always overcrowded and understaffed, others dirty, some brand new and spotless, some knowledgeable, some not, it runs the gamut. If you have a rare or unusual condition like me, even the doctors themselves may be ill-prepared. If you’re on Medicare or Medicaid and your regular doctor does not have privileges what do you do? 

Today I thought I would offer a few strategies on how to navigate the world of the ER should the need arise. Below are a few tips. I hope they help. 

  1. Be clear, concise, and informative from the beginning. If you are being brought in by ambulance or just admitted by the nurse give the EMTs or the Nurses as much direct, important info on your condition. Show them immediately you can control your own care and you are extremely knowledgeable regarding your condition. If you need them to follow certain protocols you use at home for your own safety such as transferring or using the bathroom tell them. If you use a urinary device like Men’s Liberty, tell them. If you need to, ask their level of experience with your condition.
  2. Be polite, cooperative, and grateful. You catch more flies with honey. ER staff work long hours in a depressing, stressful environment. They are understaffed and underpaid. Many don’t see their families for hours at a time. They are in the business of saving lives, give them a little grace. Say thank you. Show them your gratitude and look for ways to make their job easier. A little goes a long way and if you’re in a tough spot they will go the extra mile to help you.
  3. Voice ALL your concerns. Be sure you and the doctor or doctors are all on the same page and they all have the same information. Don’t be afraid to remind them of things important to you. Don’t be afraid to ask even the simplest questions and be honest about your fears.
  4. Know your rights. If you want a second opinion, get it. If a staff member is rude and disrespectful, speak up. It’s your body and your health. Own it.
  5. Stay calm. Pain and suffering can be stressful. Going to the ER, especially with no idea what is happening can be very frightening. The more you can remain in control the better you will complete steps 1-4 and the safer you will be.

That’s all for this month. I hope it was helpful, that you only have good health, and do not have to visit the hospital. If you do, remember these five steps and you’ll recover well.


Thanks for reading.


Posted by Caleb Bartlett

Mar 28, 2017 1:27:35 PM

These days it seems like every news outlet, social media platform, and Lord knows what else is buzzing with speculation over what is going to happen with healthcare. Will they abolish Medicaid? What will happen with Medicare? Will disability benefits be cut? These are tough things to consider. Many people are concerned, some even terrified what will happen to them if these things become a reality, and understandably so. I certainly understand that there is no one-size-fits-all approach, the situation is vast and complex. There are many, many people who simple can’t work, can’t care for themselves… maybe you are reading this and you are caregiver or family member of someone who is the victim of stroke or brain trauma. What can you do?

If history has proven anything it is that in times of great change and upheaval if people will push aside fear and work together they can find a way. The answers to the troubles of our nation and the planet are not to be found in fighting each other out of fear, but coming together in peace to fight the fear itself. Take heart reader, you are not alone. Do you need a steady, work-from-home income? Get online, read, improve yourself. Find out what is out there. Depend on yourself, not Uncle Sam. Do you have health issues that are largely diet-based? Make some changes and reduce your dependence on costly medications. Maybe you have paralysis or a similar condition, express your concerns to your doctor, connect with others like you in your community and as a group seek out an attorney who specializes in disabled rights. Maybe you live in a rural area and have a few acres of land. Get involved with the slow food and local food movements in your area. Start providing healthy food for those with greater disabilities. Speak to your local politicians. Who knows… you could start a grassroots community movement that could change the face of healthcare forever.

I believe in people. I believe in the strength and goodness of the human spirit. On the other hand, I do not believe in fairy tales or castles in the sky. Real change takes real action, and action takes work. Don’t let the years of physical difficulty take away your will and determination. I hope this message encouraged you. I believe one day in the near future I will get a headline across my news feed that reads, “Man in wheelchair redefines medical coverage for millions”.

Thanks for reading.

Topics: Spinal Cord Injury with Caleb, Guest Blogs, incontinence

Holistic Kidney Health

Posted by Caleb Bartlett

Feb 22, 2017 3:43:45 PM

 As a survivor of spinal cord injury for almost twenty-three years I have been blessed with very good kidney health. Sadly, many of those in a similar situation have not been as fortunate. I recognize that not all conditions have the same cause and not everyone reading this may have a spinal cord injury, but considering that most of the readers of this blog are using or are affiliated with the Men’s Liberty product in some way kidney health was a good topic to tackle. Kidney health starts with hydration. With the constant availability of soft drinks, energy drinks, teas, and other beverages filled with sugar and sugar substitutes that tease our brain’s pleasure centers it’s easy to think we are hydrating when we aren’t. This month I am going to give a few simple (and cost-effective) methods to hydrate properly and prolong the life and cleanliness of your kidneys. 

If you have ever cleaned the filter on a fish tank or air conditioner you know how the smallest particles can build to a nasty mess over time. As you go about your daily life the blood pumped through your body not only carries nutrients, but removes the impurities that are rejected by cells to maintain health. Bacteria, uric acid, heavy metals, salts, and other toxins make their way to the kidneys where they are filtered, drained into the bladder, and washed away when you urinate. When the body lacks the proper balance of fresh water the blood and kidneys must work harder to push those toxins out. Think about it… what moves faster through a straw, a milkshake or, well… water? So how do you get a proper hydration cycle?
  1. Give your kidneys a much-needed break. Oftentimes we are conscious about what we eat, but not what we drink. Read the label. Sugar, aspartame, artificial flavors, sweeteners, and chemicals you can’t pronounce should be removed from your diet. Coffee and tea are acidic and the caffeine they contain will dehydrate you regularly.
  2. Drink natural things. Water, herbal teas, freshly juiced fruits and veggies. If you have been diagnosed with sand in your kidneys water with lemon and cranberry juice low in sugar regularly will help greatly.
  3. Observe your body. When do you urinate most during the day? If you have paralysis, does your sitting position or laying down effect how you urinate? Do you have difficulty when it’s very hot or very cold? Share this with your doctor.
  4. Watch what you eat. Eat simple foods. Find healthy proteins and vegetables and stop fast food and snack foods like chips and cookies.
  5. Move around. Avoid a sedentary existence as much you possibly can. Get your blood pumping and moving those impurities from your body.
Kidney infections are nothing to play around with. An ounce of prevention is worth a pound of cure. If you need to make a lifestyle change, do it. Sure, that sugar-sweet soft drink tastes good and gives a happy feeling, but isn’t a long life and good health better that a few moments of satisfied taste buds? Best of luck, and take care of your body.

Thanks for reading.

Topics: doctors visit, urinary tract infections, Guest Blogs, incontinence, Kidney Health

Resolve To Be Resolute

Posted by Caleb Bartlett

Jan 27, 2017 10:47:53 AM


I am still trying to believe it is 2017. I remember when 2000 seemed a long way off. With each new year comes plans, resolutions, to-do lists, and the like as we make a renewed attempt to better ourselves and our lives. I know I do… lose more weight, pay off debts, eat better, take on a new project, sound familiar? The hard part is always following through. Mustering will power for any challenge in life is the real challenge itself. We love it when our favorite athlete scores a touchdown or gains a knockout. We cheer and shout as they seem to conquer their opponent with ease and power. What we do not realize is that victory was not won in that monumental moment, but long before, in little moments, moments when no-one was looking, no cheering crowds, no fancy uniforms, no cold drinks, no rub-downs or massages. That victory was won in painful increments, cold and snowy morning runs, sweltering hot wind sprints, blisters, bruises, broken bones and teeth, beat-downs, and even losses. Maybe even the laughter and mockery of haters, or the lack of support of family and those they look up to. These are the moments when the victory is truly accomplished.

At the risk of becoming an advice column… let’s rephrase… we call it an encouragement column. Either way you slice it, I hope you come away from reading this feeling motivated and ready to move the ball down the field of life. Maybe your reading this and you’re a new injury or diagnosis, or maybe you’ve been dealing with a physical issue for many years. No-one likes limitation, illness, or pain. It can lead to depression, tension in relationships, emotional breakdowns, and even more illness. It seems giving in to the familiar and comfortable makes us feel better. Fatty comfort foods, TV binging, and other addiction-forming behaviors can crop up, weakening us further, and providing only a short-term, superficial solution.

So this new season of 2017 I say to all of my cyber readers who may be struggling with the first step, GO FOR IT! Do you want to get in shape? Take the first step and look for a gym. Want to get smarter? Get a library card, or open an Audible.com account. Want to eat healthier? Find a nutritionist. The journey of a thousand miles starts with one step. Then… stick with it. Do ONE THING every day for twenty-one days and it will become a habit. Once a habit develops it becomes an instinct. When that change takes place those little victories become greater and greater.

Start letting your will power define you in 2017. Make it your best year yet. Resolve to be resolute in your resolution. Sound like a bunch of motivational mumbo-jumbo? Only if you talk yourself out of it. Believe, do, and move forward. I had a high school teacher who said that “Can’t never did anything”. I believe this to be true.

What’s your 2017 resolution? Do it.

Thanks for reading.

Topics: Spinal Cord Injury with Caleb, incontinence

A Holiday Message...

Posted by Caleb Bartlett

Dec 22, 2016 1:45:08 PM

Well where did that year go? I think 2016 will go down in history as one of the strangest years in history. I hope all of you made it through unscathed and positive about the future. In these uncertain times it can be difficult for many, especially those of us in chairs who often depend on caregivers for help. Life in a chair can often make us feel marginalized or different, adding the holiday mayhem and social madness to the mix can trigger sadness, depression, and sometimes feeling alone… even among family.

I have been blessed with a close, caring family, others not as much, and many somewhere in the middle. I don’t really have anything to complain about, but emotions are complex and funny things. I know what it is to feel lonely even in a crowded room full of loved ones. If I can instill one thought of the minds of my readers this season, and that is, if you are alone or feeling alone during this happy season take a few things to heart.

You are not alone. Life is a difficult thing. We are all on this journey, learning and growing. Each of us has something, some may be worse than others, but we share the same feelings and joys and fears. Take the time to look around. Count your blessings. That may sound trite, but it works.

Take time to tell the ones you love that you love them. You get what you give. Feeling alone? Show someone else they matter. Thank them for something, anything. Channeling your emotions in another direction can be a powerful tool for changing your mood.

Forgive somebody. Never underestimate the power of forgiveness, even if it’s yourself. Oftentimes we feel alone because we’re holding on to past hurts, misunderstandings, and times when people have done us harm. This time of year, despite all the consumerism, media hype, and modern noise we endure it really is a time when people feel empathy towards others. The act of giving gifts alone causes us to value the relationships we share with our fellow man. While we’re in this mindset we can take advantage of this time to mend the past and right a few wrongs. Remember, the high road is always best. Extending the hand of forgiveness doesn’t always mean it will be returned, but that doesn’t matter. What matters is you. The peace of knowing you have done the right thing will help you beat the loneliness blues.

I know that this blog is often about living with a disability, but all the healthy living tips, how-tos, and personal anecdotes don’t mean a thing if we don’t have the peace and contentment inside ourselves. Life is more than the physical and these experiences we go through can trigger complex emotions that affect our health, daily decisions, and more. This holiday season take time to be a better person. Reach out and use the spirit of good will to bring healing and happiness to yourself and others.

May this season of peace bring peace to others through you. Thanks for reading.

Topics: family, Spinal Cord Injury with Caleb, compassion

Taking Control

Posted by Caleb Bartlett

Dec 8, 2016 11:07:30 AM

As with any traumatic injury or debilitating illness it can feel like one has lost control of one’s life. A seemingly endless stream of doctors, therapists, aides, social workers, insurance workers, and more march through your life almost daily. It’s easy to feel vulnerable, at their mercy, and without options, especially if you have lost a job or given up a career.


Some of you reading this may have children and find yourself in a situation where you are limited in your ability to physically interact with them. Maybe you depend on government for Medicaid or other programs for assistance and the current uncertainties are causing fear and anxiety. These situations can wear heavy and often result in feelings of hopelessness and depression.

I have been in a wheelchair for 22 years. If you’re reading this and I just described your life, you’re not alone, I know exactly how you feel. I have lived it myself. However, I have also had the privilege of navigating my way through these intense changes and finding a balance in the chaos. You are not powerless. There are ways you can take charge of your life. This month I’ve made a list five things you can put into practice right away that can bring long-term stability.

  1. Take Property Inventory- Get out a piece of paper, use the computer, whatever works. Make a list of the things in your life mentally, emotionally, and physically that have been affected. Now study that list objectively. What can you change with little effort? What can you change, but will take hard work? Write both of those on a second list. Discard the first list. Now take the second list and ask yourself… What can I change by being positive? What can I talk to counselor about? How can I share this with my family or spouse? Work from the inside out. You don’t need a doctor or to go to a gym to work on the mind and heart. When you get to the physical stuff go to the second step.
  2. Explore the Alternatives- What physical issues can you become proactive about? What medications can be changed or substituted with vitamins and supplements. What does changes in your diet do? Fresh air? Activity and exercise? Even just getting out to the park, beach, or a movie can have a huge effect. In pain? Some doctors will prescribe medical massage. Consult a Homeopath or Naturopath. Research new technologies and trends. Even a better cushion or adjusting your chair can do huge things.
  3. Assess Your Skills- What can you do? Can you use a computer? Drive? What do you know? Who do you know? How can you harness these assets into income or starting a business? Consider going back to school or learning something you can do. Everyone can do something!
  4. Build A Network- We live in the information age. Get online, use the forums and discussion groups. Tell your story and get others support and input. Share ideas. Don’t be ashamed to ask for advice or help. Everybody had to start somewhere. Do unto others! If it’s in your power to call in a favor on behalf of someone else, do it. Start putting out a reputation as a helpful, generous person, and see what comes back your way.
  5. Quiet Your Mind- Take a few minutes every day and turn off the TV, the radio, the internet, and the phone. Sit quietly and just relax. Face your fears and dismiss them. The answers will come.

Life is a complex thing, and I sure don’t have all the answers. I do believe with determination, a little effort, and dedication we can turn these tragedies into good.


Thanks for reading.

Topics: Caregiving, prostate cancer, Health Literacy

Renting a Home from a Chair

Posted by Caleb Bartlett

Aug 16, 2016 4:36:16 PM

My family and I recently went through a rather difficult, yet educational experience. For the first time since my injury I was jointly responsible for a home. By the this I mean my name was on the lease. Many of us in chairs often live with family, some us received a settlement and bought a home, but there are those of us making a go of it out there in world living in a place we do not own. This means Landlords and that can be good, or really bad.

Last year my family and I moved to a new state to start a business. We had trained, saved, and searched for the right opportunity as well as the property. We planned to run a home-based food business and so infrastructure and amenities were equally important as accessibility. We finally found what we wanted and in a flurry of activity we signed a lease, packed, and moved. So as not to bog down this post with the gory details I’ll get to the point… the Landlord was dishonest and breached the lease causing us to lose a years’ worth of hard work, money, and ultimately we had to get a lawyer. Now ultimately our case stands on its own for anyone leasing a home, but in our effort to educate ourselves about our rights I learned a few things I felt it might be worth it to pass on to you. So here’s a few tips...

Make friends with a Lawyer. I’m serious. Attorneys get paid for their time and do get expensive, but the $150-$250 to have them read through a lease agreement could save you thousands on down the road. If you’re in a chair there are many pro bono disability rights services that can at least advise you on such matters before you sign anything. If you have a friend or family member who is an attorney don’t assume favors, be honest about what you can afford, tell them what you need, and offer them something for their time.

Don’t be in a hurry. If you are even remotely considering moving start looking now. Give yourself time. When you rush you settle for second best and a lease can be a difficult thing to get out of.

Don’t be impressed and don’t believe the pictures. Anything can look great with a coat of paint. If you are limited physically take someone with you who can look at the attic, the crawl spaces, the plumbing, and under the cabinets. Have them check for rot, mold, leaks, pests, and anything that could be unsafe or a fire hazard.

Be specific with the Landlord about your needs. Educate yourself about disabled tenant’s rights. There’s a lot of them and they’re in your favor. There are many resources online. However, be kind and polite. Explain your daily routine and how the space does or does not work, and what you can do to change it. Educate yourself on all the accessibility aides that are modular and can save them money. They will appreciate that.

Ask for references and do your homework. They will want references from you, expect no less from them. If you can, speak to previous renters, other current tenants, employees, or other professional connections. Listen and watch their reactions, it will tell you a lot.

Get it in writing, get it in writing, GET IT IN WRITING. Protect yourself now and you won’t have to fight later. If the lease is vague, get it rewritten in clear language. Know exactly what you are responsible for and what you are not. If you need special wording due to the wheel chair be honest and say what you want.

Life in a chair can be a daily challenge. Knowledge is power and can ease the stress of so many unnecessary battles. Living independently is a great blessing and gift that many don’t get to enjoy. The more of us who get out there and make it the norm the more landlords will make more and more properties accessible.

Thanks for reading.

Topics: family, wheelchair, Patient Stories, Guest Blogs, how to

Get A Job

Posted by Caleb Bartlett

Apr 21, 2016 11:08:00 AM

Today’s job market is highly competitive. No longer having a college degree guarantees success in the workplace. With more and more jobs going overseas or becoming specialized finding employment can be difficult for able-bodied people, never mind the thousands of folks with physical limitations. Furthering your education can be time-consuming and cost-prohibitive as well. How do those of us already battling labels and physical impediments rise above and meet our needs?

In my experience of living in a chair for 22 years the greatest hindrance I have found to financial success is self-consciousness and self-doubt. Many people who are different let the media or the status quo or even doctors determine what they are worth or capable of, but the real truth is that the only person who can decide that for you is you. These kinds of deep, personal changes don’t come overnight and require a great deal of effort, but while you are working on success from the inside I have  a handful of practical steps you can take towards personal financial stability.

  1. Know your strengths. Are you a good communicator? Are you comfortable on the phone? Maybe you are good with numbers, or you’re more of a “big idea” person? Do you love animals or children? What are you passionate about? Knowing your strong points will build confidence and give you grounding when going through interviews and promoting yourself. Don’t be afraid to make a list!
  2. Think outside the box. Everybody needs something and you just might be their answer. There is great liberty in being your own boss. With tools like the internet and social media running your own business in a professional and powerful way has never been more easy than it is today. Find your niche and exploit it!
  3. Know your stuff. We have access to more information than any other generation in history. Books online, college courses, even YouTube! Don’t stop reading and studying. It is said that 1 hour of reading a day will make one an expert in their given field in 7 years. Companies spend millions of dollars each year on consultants to improve their chances of success. Imagine getting paid just to talk! Knowledge is a precious commodity, stock up on it.
  4. The Government is not your source. Use those special programs and disability benefits as a means to an end. Use the money wisely and work on a strategy over 5-10 years to reduce your dependence on Federal help. You’re not a ward of the state, you’re a valuable, contributing member of society. Start cultivating that view today.
  5. Clean out your financial closet. Get your money and banking organized. No matter how broke you may be! Keep accurate records and set a budget. If you have bad debt or credit card debt consider consolidation or a doable repayment strategy. Reduce unnecessary expenditures like unhealthy snack foods, cigarettes, alcohol, video games, and other non-productive pastimes. Set aside 5% of your monthly income for savings.
  6. Volunteer. This is your chance to get out make connections. Strut your stuff. Find something you’re passionate about and donate your time. You never know the connections you will make and the opportunities that will open up to you. If they see what you do for free, they will know what you can do with money.
  7. Don’t be afraid of “No”. Pick yourself up and move on. If they don’t see your value you don’t want to work there anyway. Plain and simple. 

Go forth and prosper and don’t be afraid. You can determine your future, and let nothing stand in your way.

That’s the main advantage of Men’s Liberty:  No worry!

Topics: tips from Men's Liberty users, Guest Blogs, incontinence

Tales from the aisle seat...

Posted by Caleb Bartlett

Feb 24, 2016 10:36:00 AM

Traveling by plane is getting more and more stressful. From security checkpoints pat-downs and shoe removals to TSA officials who view mother’s breast milk as potentially toxic substance, there are a gazillion mundane things that can really get things off to a bad start. Long lines, lost luggage, inattentive attendants, flight delays, long layovers, and more can have you spending more time just getting to and from your destination than the actual vacation. If you’re traveling on business it can wear you down, inhibit your performance, cost money, and even affect your health. This applies to all of us, but what about the added difficulty for those of us in chairs?

I could write six months’ worth of blogs on the ins and outs of dealing with airlines from a chair, but for now I will offer a series of suggestions for dealing with the airlines that will help make the fast-approaching vacation season a bit easier to navigate if you plan on getting out of town. So here we go…

    1. Never Book Your Tickets Online- Do your research and book by phone. Find out which airlines have the best customer service reputation for assisting people in chairs, and supply the most direct flights. Speak directly to an agent and ask lots of question. Airlines process thousands of calls a day, be specific and give them all the info you can. Remember to ask that they waive the phone booking fee because you called with specific needs.
    2. Try to Book Direct- Nobody in chairs likes awkward transfers and if you have any layovers or plane changes you increase you travel complications and even chance for injury. If you cannot transfer unassisted do not travel alone. Airline employees are not wheelchair-savvy, and are often rushed and trying to get the plane filled, packed, and on its way on time.
    3. Do Their Thinking for Them- Never assume airline or security staff know anything. From the moment you book your tickets, to claim your baggage, make it clear what your needs are. If you need an aisle seat with an adjacent seat, tell them and tell them why. Always clarify that you need pre-boarding time before the other passengers. If you use a manual chair tell the attendant at the door of the aircraft to store it in the forward compartment and do not stack anything on it.
    4. Take Your Time- Arrive at the airport as early as you need to in order to check your bags and get through security so that you can be at the gate 90 minutes before boarding. If you use a catheter try to void before boarding. Rushing creates a recipe for disaster.
    5. Know Your Gear- Travel as streamlined as possible. Keep an emergency kit of all your medical essentials in your carry-on. Keep wheelchair add-ons like cushions and backpacks with you in the cabin. Pack smart.
    6. Don’t Be a Jerk- You catch more flies with honey. Don’t hold people responsible for what they don’t know. Be kind, grateful, and take time to teach and it is amazing what people will do. Service industry staff are used to being yelled at and walked on. They’re more afraid of you than you are of them. Help them help you and you’ll pave the way for another person in a chair to have a better, safer trip next time.

Happy traveling!

Topics: spinal cord injury, Spinal Cord Injury with Caleb, travelling with incontinence

A Broken Cord: Part 2

Posted by Caleb Bartlett

Oct 12, 2015 1:00:00 PM

About two weeks after my accident I was lying in the Intensive Care Unit of what is now Shands Medical Center in Jacksonville, FL when the hospital-appointed Psychiatrist walked into my room. I knew immediately she needed more therapy than I did. With a feigned look of interest she glanced over my wall that had been covered with posters of my favorite surfers in various locations around the world and said to me, "Well, we may not get you up on a board again, but we can get you down to the beach. What do you think of that?" I looked her square in the eye and said, "It's not your responsibility to see to it that I get up on that board, but you will see it happen." She left the room and never came back.

Over the years I would encounter this kind of misinformed, patronizing, arrogant hubris from every sector of the American medical establishment. From doctors to therapists to medical equipment suppliers to case workers, time and time again I have been forced to endure some absurd, discouraging statement about "the way things are" in the spinal cord world and how "there's just no getting around it". Even when there is overwhelming evidence to suggest otherwise.

However, the biggest shock of all was the prevailing doctrine espoused and accepted by the industry which states that because there are so few spinal cord injuries it does not warrant serious monetary investment to find a cure or back a promising treatment.

So we just shake our heads sadly and agree as another year goes by and with 30 new spinal cord injuries a day. There seems to be a serious flaw in the system. That is equivalent to $3 Million more in medical insurance expenditure than yesterday and it's not counting initial hospital costs. I racked up $250,000 alone in the first week of my injury and that was in 1994!

So do the math in your head. If there are 365 days in a year at a rate of 30 new injuries per day... that's 10,950 new injuries per year. Plug in the annual estimated living cost of $100,000 per year and yes, you guessed it, $1,095,000,000 in new insurance payouts per year. But there's no money in Spinal Cord Injury.

Yeah... right.

After my posting last week I did some more research. If you have suffered a spinal cord injury invariably you need a wheelchair to get around. The two largest companies who manufacture wheelchairs are Invacare and Quickie. Both companies also own several subsidiaries which make cushions, seating systems and much more. Both companies together average over $5 Billion in annual revenue. The secondary conditions of spinal cord injury are serious moneymakers. Most SCI survivors take a daily cocktail of pain killers, spasm reducers, anti-depressants, diuretics, bone loss preventatives and much more.

And you are telling me that big business sees no monetary gain from SCI?

Am I saying that money and business is evil? Not in the least. Prosperity is a gift, a tool by which a man can better himself and his world if he has the heart to do so. What I am saying is that it does not have to be this way.

But what will it take? I will tell you...

  1. We have to come together. We need ONE unified vision.
  2. We need to have TOTAL access to the most up-to-date research and their results.
  3. We need to have a VOICE on what research gets funding and which promising treatments should be advanced. We need to have a realistic timeline for results and focus on the single, most effective treatment we have to date, then back it with the full financial force of all our resources. Finally get the product to us, the end user. After all what good is all the money spent on research if you don’t spend the last amount to get it out of the lab, into production and over the finish line to those who need it most?
  4. We need to notify our insurance carriers, including Medicaid and Medicare when there is a low-cost, effective treatment for SCI and demand that they put pressure on the relevant major companies who are making a profit from SCI to directly fund the commercialization and approval of promising new therapies.
  5. Encourage private research and biotech start-ups from within our own ranks that are fast, goal-oriented and ready to get real working product out to us, the end user, in a timely manner.
  6. Never accept "No" as an answer again.

I believe it's possible. Can you see it? What kind of precedent would it set in the industry? What if we beat the industry at its own game? We have to show the world how bad we want to walk.

So what is it going to take? Before I leave you today ponder this a moment. What if there was just such a technology? Something here, now. What would you do to get your hands on it?

Get Help Now!

Topics: Spinal Cord Injury with Caleb